ROCK THE RED THIS MARCH AND SUPPORT NATIONAL BLEEDING DISORDERS AWARENESS MONTH AND THE NEVADA CHAPTER OF THE NATIONAL HEMOPHILIA FOUNDATION
Red Tie Campaign aims to raise awareness and much needed funding for the children and families living with bleeding disorders
The Red Tie Campaign is back for 2021! This March, all Nevadans are encouraged to don a red tie, rock a red scarf, or put on their best red outfit to raise awareness, funds and support for the bleeding disorders community and the Nevada Chapter of the National Hemophilia Foundation (NHFNV) during Bleeding Disorders Awareness Month. More than three million Americans have a bleeding disorder, such as hemophilia, von Willebrand disease, or rare factor deficiencies. These disorders prevent an individual’s blood from clotting normally; can result in extended bleeding after injury, surgery or trauma; and can be fatal if not treated effectively. In Nevada it is estimated that more than 30,000 people have a bleeding disorder, often undiagnosed or misdiagnosed.
It’s easy to get involved! Friends, family and supporters of the bleeding disorders community are simply asked to take a photo or share a selfie in March of them wearing red to tell the world you stand with the community and the millions of people throughout the United States living with bleeding disorders using your favorite social media platform using the hashtag #RedTieNV and tag @NevadaNHF on Instagram or Twitter or @NVNHF on Facebook.
NHFNV is also encouraging donations throughout March’s Red Tie Campaign raise much needed funds to support advocacy, peer support and education for families and children with bleeding disorders in Nevada. Every dollar stays in Nevada and helps patients suffering from bleeding disorders reach a productive, pain-free and independent future. Donations can be made at any time through the NHFNV website at https://hfnv.org/get-involved/give.html.
Throughout National Bleeding Disorders Awareness Month, NHFNV also advocates and meets with all six Nevada legislators virtually about the importance of comprehensive health care to Nevada’s bleeding disorders community. To learn more about bleeding disorders, NHFNV, and how to get involved with the 2021 Red Tie Campaign, visit https://hfnv.org
Bleeding disorders, a group of disorders that share the inability to form a proper blood clot, include hemophilia, von Willebrand disease, and rare factor disorders. Improper clotting can be caused by defects in blood components such as platelets and/or clotting proteins, also called clotting factors. Bleeding disorders are characterized by extended bleeding after injury, surgery, trauma, or menstruation. Currently, there are no cures for bleeding disorders, and treatments vary depending on their severity. For some bleeding disorders, there are clotting factor concentrates that can be infused prophylactically or on-demand at home, to prevent or treat bleeds.
Bleeding disorders are life-threatening, debilitating, and expensive to treat. A child with severe Hemophilia will spend over $200,000 annually to prevent bleeding. Some children and adults build up inhibitors to the treatment and the costs can exceed $1,000,000 per year. Failure to preventatively treat the disorder can result in prolonged painful bleeds that cause permanent and severe damage. The entire family is affected by the bleeding disorder physically, emotionally, and financially. With more than 30 years of experience, NHFNV provides programs and services to people affected by bleeding disorders so that they can better cope and can become self-advocates for themselves and/or their family. NHFNV partners with the Hemostasis and Thrombosis Center of Nevada, other agencies, and medical professionals to provide programs and services unique to those with bleeding disorders to best meet their needs.
About the Nevada Chapter of the National Hemophilia Foundation
Founded in 1990, the Nevada Chapter of the National Hemophilia Foundation mission is to improve the quality of care and life for Nevadans affected by hemophilia, von Willebrand disease and other inherited bleeding disorders through education, peer support and advocacy. Donations stay right here in Nevada, providing family services, youth development, and emergency funds to help patients reach a productive, pain-free and independent future. Over 300 volunteers annually support more than 30 programs and events like Camp Independent Firefly and the Unite for Bleeding Disorders Walks. Additional information on the NHFNV can be found at www.hfnv.org and social media @NevadaNHF on Instagram or Twitter and @NVNHF on Facebook.