Nevada Chapter of the National Hemophilia Foundation.
FUNDRAISING IS AS EASY AS RIDING A BIKE
Bikes in Your Blood to raise awareness while fundraising for the
Nevada Chapter of National Hemophilia Foundation
Local charity announces biking activities on April 8
Help raise awareness for bleeding disorders during the Bikes in Your Blood cycling fundraiser on Saturday, April 8, 2023, to support the Nevada Chapter of National Hemophilia Foundation. All proceeds will go to support families in Nevada with inherited bleeding disorders.
Registration is open for the Bikes in Your Blood event with cycling opportunities for extreme bike enthusiasts, fun participants and E-bike riders. The event begins and ends at Equestrian Park South riding along three routes along the River Mountains Loop Trail (Three Sisters) through Lake Mead National Park. The 36-mile ride will begin at 7 a.m., the 14-mile ride will start at 8 a.m., and the 6-mile ride will commence at 9 a.m.
“This is a great, family-friendly event open to all ages and abilities while encouraging a safe, active lifestyle,” says Jacob Murdock, executive director of the Nevada Chapter of the National Hemophilia Foundation. “The weather will be beautiful, and the scenery will be breathtaking. Along with the companionship and helping these families in need, this is a great way to spend a Saturday.”
More than 3 million Americans have a bleeding disorder, such as hemophilia, von Willebrand disease or rare factor deficiencies. These disorders prevent an individual’s blood from clotting normally; can result in extended bleeding after injury, surgery or trauma; and can be fatal if not treated effectively. In Nevada, it is estimated that more than 30,000 people have a bleeding disorder, often undiagnosed or misdiagnosed.
The Nevada Chapter of the National Hemophilia Foundation provides services for individuals and families living with bleeding disorders. Currently, there are no cures for bleeding disorders, and treatments vary depending on their severity. Bleeding disorders are life-threatening, debilitating, and expensive to treat. A child with severe hemophilia will spend over $200,000 annually to prevent bleeding. Some children and adults build up inhibitors to the treatment, and the costs can exceed $1 million annually. Failure to preventatively treat the disorder can result in prolonged, painful bleeds that cause permanent and severe damage. The entire family is affected by the bleeding disorder physically, emotionally and financially.
With more than 30 years of experience, the Nevada Chapter of National Hemophilia Foundation provides programs and services to people affected by bleeding disorders to cope better and become self-advocates for themselves and their families.
Bikes in Your Blood will be held on Saturday, April 8, 2023, beginning at 7 a.m. at Equestrian Park South, 1298 Equestrian Dr. Henderson. Registration is open and can be accessed at hfnv.org/get-involved/special-events/bikes-in-your-blood.html. Information about the Nevada Chapter can be found at www.hfnv.org and social media @NevadaNHF on Instagram or Twitter and @NHFNV on Facebook.
About the Nevada Chapter of the National Hemophilia Foundation
The Nevada Chapter of the National Hemophilia Foundation, founded in 1990, is dedicated to finding cures for inheritable blood disorders and addressing and preventing the complications of these disorders through research, education, and advocacy, enabling people and families to thrive. Donations stay right here in Nevada, providing family services, youth development, and emergency funds to help patients reach a productive, pain-free, and independent future. More than 300 volunteers annually support more than 30 programs and events like Camp Independent Firefly and the Unite for Bleeding Disorders Walks. Additional information on the Nevada Chapter can be found at www.hfnv.org and social media @NevadaNHF on Instagram or Twitter and @NHFNV on Facebook.
